Tourette's Disorder Logo Tourette Syndrome Tourette Syndrome is also referred to as Tourette’s Disorder, Tourettes, TS and sometimes Tourette Spectrum Disorder.

 

Biofeedback and Tourette Syndrome


Biofeedback

Biofeedback has been tried as a remedy for the uncontrollable tics and compulsions of Tourette syndrome.Biofeedback is useful in helping the conditions of many disorders, ranging from re-education of damaged nerves to certain types of epilepsy, but is most typically used in treating disorders like TMJ, irritable bowel syndrome, chronic headaches, high blood pressure, generalized stress, anxiety and insomnia.

This specialized type of training allows people to gain control over physiological reactions that are ordinarily unconscious and automatic. Malfunctions in these automatic responses contribute to a wide variety of medical problems. In study after study, biofeedback has shown the ability to help bring such counterproductive reactions back into line, providing significant relief for many of the people who try it.

Biofeedback is a valuable option, because it is a noninvasive therapy that can be used to train you how to manage and change troublesome physical symptoms.

Biofeedback involves using electronic instrumentation to monitor specific, often unconscious physiological activities and habit patterns and then "feed back" the information. Once the patient is aware of what the body is doing, they can change those patterns to reduce or eliminate symptoms.

Although biofeedback could help control certain ailments through disciplined mental effort, it has nothing in common with some forms of mind-body therapy.  It does not rely on maintenance of some sort of theoretical balance or harmony in order to achieve its effects. Instead, it seeks control over specific, measurable physiological reactions that have somehow gone awry. As such, it can prove especially useful for any disorder caused or aggravated by involuntary muscular tension or tightening. Like some forms of mind-body therapy, it's entirely useless for fighting infections, curing cancer, relieving allergies, or healing injuries.

Like other mind-body forms of therapy, biofeedback is notably free of side effects. Biofeedback is often turned to by people seeking a respite from the side effects of conventional medicines.


How the Treatments Are Done

Biofeedback is not a passive treatment. It requires intensive participation in learning to control such normally involuntary ("autonomic") functions as heart rate, blood pressure, brain waves, skin temperature, muscle tension, breathing, and digestion.

The first session, involves questions about health and that of family members. The biofeedback therapist will then apply sensors to various points on the body. The location depends on the problem that needs treatment. For migraines, sleep problems, and mood disorders, for example, the electrodes are often attached to the scalp; to treat heart problems and muscle tension, they will be placed on the skin. Other possible sites include the hands, feet, or fingers.

The sensors are connected to a computer, a polygraph, or another piece of monitoring equipment that provides instant feedback about the function trying to  be controled, such as the tension in a particular set of involuntary muscles or circulation to a specific part of the body. Some biofeedback machines signal changes graphically on a computer display, others beep, buzz, or blink to indicate the strength or level of the function they are targeting.

The therapist will teach mental or physical exercises that can help affect the function that's causing a problem. Success is gauge by noting any changes in the intensity, volume, or speed of the signals from the machine. Gradually, biofeedback associates successful thoughts and actions with the desired change in involuntary responses.

Once an effective pattern of actions are thoroughly learned control without the aid of the feedback device is asserted.


Biofeedback has been tried as a remedy for the uncontrollable tics and compulsions of Tourette syndrome.

Although it's not a sure cure, biofeedback could help some symptoms of patients with Tourette Syndrome.

EEG Spectrum International (EEGSI) has observed considerable clinical evidence for the effectiveness of EEG biofeedback training as an adjunct modality for remediating the symptoms of Tourette syndrome. Rather than focusing on the condition as a whole, they focus on the individual classes of symptoms.

Tourette Syndrome biofeedback could possibly impact many symptoms whether they are associated with Tourette Syndrome or associated conditions and disorders.  i.e. attention deficits, anxiety and depression, oppositional-defiant behavior, conduct disorder, obessive- compulsive behavior, episodic dyscontrol, hypersexuality and addictive behavior. Little data exists to date with respect to addictive behavior or sexual behavior as it is affected by EEG training of Tourette patients.

Biofeedback for Tourette Syndrome tics.

EEGSI experiences a higher probability of achieving full remediation of tics if the tics have recently developed. This is also similar for tics induced by medication, such as that prescribed for hyperactivity and attention deficits i.e. Ritalin , dexedrine, and Cylert. However in adults with decades of history with tics, full remediation is much less likely.

It is often difficult to establish one EEG training protocol which addresses all the possible symptoms of Tourette Syndrome.  For example, a protocol selected to deal with attention deficits may not be appropriate for obsessive-compulsive behavior. Under these circumstances, the most significant and troublesome symptoms need to be addressed first in training, leaving minor ones until later. The situation is similar to that which prevails in the medical management of Tourettes, where a number of medications may be required to address all of the symptoms.

Though EEGSI experiences that the effect of the training is cumulative and permanent, it has been observed that some Tourettes patients may backslide somewhat between training sessions. In such cases, the training may have to be more frequent, particularly in the early going (perhaps three times per week), and the Tourette patient may benefit from occasional booster sessions even after the bulk of the training is completed. In the extreme case, children may even benefit from a continuation of EEG training sessions on a regular schedule. Such continuing training appears to be necessary in only a small fraction of cases.

Most of the clients referred to EEGSI for Tourette syndrome are under pharmacological management for the condition. As the training proceeds, downward adjustment of the medication(s) is usually necessary, so the person should be in the care of a supportive physician.

It is suggested that if there are no improvement in 10 to 20 sessions, or if the Tourette symptomes worsen, biofeedback is probably not right for the Tourette patient. Discontinue the training and ask the doctor about other alternatives.

Although biofeedback is harmless--and can often be helpful--it is not a substitute for regular visits to the doctor.  If using biofeedback to help ease Tourette symptoms, do not suddenly drop other forms of treatment for depression, anxiety, tics or the likes.. Continue to see the neurologist or Tourette Syndrome doctor. Eventually, he may be able to reduce the dosage of a medication as training continues.  

Remember, too, that if biofeedback techniques suddenly fail to work, there may be a new medical problem for which biofeedback is ineffective. At such times, it's wise to see the doctor for a thorough diagnosis.


Tourette's Syndrome and EEG Biofeedback Case, 9 year old boyTourette's Syndrome and EEG Biofeedback Case, 9 year old boy

Summary

Before biofeedback and medication.

"Jason A bright child, totally bored by classroom activities. Extremely sensitive to criticism or rejection. Makes funny faces and noises to get attention. Will not comply with rules. Ignores the staff. Tests limits with every adult. Inattentive, aggressive, disruptive, destructive, a loner, doesn't interact with his peers. Orders other children around. Uses foul language. Says things to intentionally hurt other children. Abusive to the school's animals. Other children have learned to avoid him. Parents do not want their children to play with Jason."

Jason was diagnosed with Tourette Syndrome with attention deficit disorder and started taking medication.

After medication with out biofeedback

"Jason has been a student in my class for six weeks. He has demonstrated the ability to 'get along' or 'function' successfully in my classroom atmosphere. Jason is working on level six in reading. He works on his problems with very little difficulty and has no problem staying on task. In my classroom, Jason has shown patience, creativity, the ability to complete tasks from start to finish. He has shown me respect, a willingness to assist me as well as other students. He knows my class rules as well as the school rules and several times I have overheard Jason reminding other students of the rules. Jason gets along well with his peers as well as with those a grade older. He shares his ideas and possessions. His social skills are good and he has learned to accept responsibility."

In the beginning,  Jason was able to sustain this behavior on very moderate doses of medication but as time went by the dosages had to be increased, new medications were tried and abandoned.

During second grade Jason started to attend a new school. He didn't exhibit the wild out-of-control behavior but he was also not functioning well in class. He had trouble starting his work and more trouble finishing it. He was often seated outside the room. He was taking extremely high dosages of all medications, at the top of the "safe" limit.

Introduction of EEG Biofeedback

We hoped that the EEG biofeedback could enhance the medication and possible, in the long run, replace it.

Jason began treatment one visit per week. After the first two or three visits, I noticed that he was using his time more productively, was less fidgety, and was calmer and more relaxed. His handwriting which had always been very messy and hart to read was drastically improved. The letters were well-shaped and within the lines, the spacing between words was even.

With this evidence I was convinced that this treatment would be effective but I also knew that once a week would not be sufficient. Jason began to attend sessions three times a week. We found that different frequencies of brainwaves controlled specific behaviors. By working on SMR we were able to improve his concentration and ability to stay calm. Focussing on Theta helped with Jason's attitude. We wanted to get rid of his defiance, oppositional behavior and negative attitudes. Beta improved his concentration and energy. In addition, he became hungry for knowledge. He would throw himself into his academic work and asked a million questions. The fourth frequency we worked with was "High-Beta". This had previously been used as an indicator of muscle tension. We did not think it had value in treatment of symptoms but what we found was that if Jason's High-Beta was not kept tightly under control he would start to behave "weird", making strange faces, walking strange, laughing hysterically at inappropriate times.

With each treatment session his brainwaves were more stable as he began, he had more control over them during the session, and was able to sustain the control for longer periods. As the training was made more and more difficult he could easily adapt and adjust his waves to the more difficult level. It was like he was an athlete in training, the more training he had the stronger his control and the longer he was able to maintain this control. It was as if he had been born with a "lazy brain" and the biofeedback was exercise which was strengthening his brain. We began to have hope for a permanent "cure."

Jason's daily medication was reduced drastically. He had been taking 8 mg of Haldol, the highest safe level for someone of his age and weight. He was able to reduce to 1 mg. He had also been taking 90 mg of Ritalin. This was reduced to 15 mg.

Daily treatment has continued for over two years now. During this time Jason qualified for District's GATE program (Gifted and Talented). He made honor roll for the first time, was awarded a teacher's award as most outstanding student, and received recognition for outstanding citizenship and sports. The level of his medication is lower than it has been since he started taking it. It has been over a year since he had a discipline or behavior problem of any kind at school. Jason has made many new friends, has run for student council, and is in the honors classes at his intermediate school. He can go for weeks without biofeedback training while maintaining control. And he recognizes when he has gone too long without biofeedback and says, "Mom, I need to go on the machine." - Read the entire essay on this EEG Biofeedback Case click here


A simple and a complex tic (Gilles de la Tourette's syndrome): their response to EEG sensorimotor rhythm biofeedback training.

Tansey MA.

This study presents a clinical treatment regime for the treatment of tic manifestation, both simple and complex. The response of a case of simple tic and a case of complex tic (Gilles de la Tourette's syndrome) to EEG sensorimotor rhythm biofeedback training are presented. Specifically, the simple and the complex tic, both of long duration, were eliminated via this EEG biofeedback training procedure. It is hypothesized that this exercising of the sensorimotor cortex resulted in increased activation of this cerebrocortical subsystem and was reflected in increased voluntary muscle control and a heightened threshold for random motor discharge, resulting in the elimination of both tics as in the response of cases of epilepsy with motor involvement to EEG sensorimotor rhythm biofeedback training. The additional psychophysiologic sequelae of the complex tic--attention deficit disorder--remediated in the manner of the response of learning-disabled to EEG sensorimotor rhythm biofeedback training. - NCBI


 

Back to Alternative Treatments for Tourette Syndrome

References

EEG Spectrum International
www.eegspectrum.com

Int J Psychophysiol. 1986 Jul;4(2):91-7

NCBI - National Center for Biotechnology Information

PSBMB - Pennsylvania Society of Behavioral Medicine and Biofeedback


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Last Updated 30-Oct-2004

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